Thursday, April 29, 2010
Various Updates
So far, I like the new therapist. He's very calm and relaxed, and we've already traded photographs of our cats. I see him for the second time on Tuesday, so we'll see how things go.
School is a crazed blur at the moment, with more piles o' grading and end-of-semester ceremonies (one of which, tomorrow, I'm MCing) than I can keep track of. The chaos is of course compounded by my grieving brain, which would perceive the world as at least somewhat chaotic even if everything else were calm and serene.
The chaos is also compounded by our home-improvement project: The Ducts. (Remember that great line from GalaxyQuest? "Ducts! Why does it always have to be ducts?") The contractor and his crew did most of the work on Monday, replacing all of our ducts, which had collapsed or were nonexistent. (The contractor said, "Your crawl space is really well heated. The spiders love it down there.") The work would have been finished on Monday, too, save for one complication: the contractor had hoped that the main metal duct from the first to second story was intact. When the crew got in there, they discovered that it was neither metal nor intact: it was plastic, and had collapsed.
This means that our ductwork was never up to code, but nothing about the house has ever been up to code, so we shouldn't have been surprised. Every contractor we've ever hired has turned interesting colors, ranging from sheet white to purple, and said some version of, "This is the worst work I've ever seen." The winner so far was the ashen plumber we'd hired to fix our front-yard sprinkler system, who informed us that the system was so far out of code that we risked infecting the entire Truckee Meadows with cholera if there were ever a flood. Our front yard is now covered with tasteful rocks: no sprinkling required.
I can't wait to see what happens when we have our old deck removed.
But I digress. Anyway, no first-to-second-floor duct meant an extra day of work and another $500 dollars, plus holes in the wall because the workers have to pull out sections of sheetrock to install the new duct. Sigh. The good news is that when this is done, we may actually get heat and air-conditioning upstairs! Woo-hoo! The downstairs is already heating much more efficiently, because all the ducts work now. I'm sure the spiders are feeling chilly, but they can relocate to Vegas.
Meanwhile, I've continued having trouble with my BlackBerry, which will only recharge if it's plugged into my laptop (not an outlet), and which isn't holding a charge as well as it used to. The battery's pretty new and worked beautifully before this, so I suspect something funky's up with the phone.
My two-year contract isn't up until September, but I'm due for an early upgrade to a BB 8530, which has a better camera and trackball. The problem is that we're paying Verizon way too much money at the moment, partly because Dad and Fran's phones are still on the account. Gary uses one of them, but he only uses the phone under absolute duress, as in direct order, as in "Be sure to bring your phone so you can call me when your plane lands in Philly." I'd gone to Verizon stores here and in Philly and gotten confusing and conflicting information about what I could do when. Today, I finally called Verizon Customer Service.
I had to talk to three different reps in three different departments, but I think I have it figured out now. If I go to a single line and cut back my number of minutes -- I don't use the phone that much, and could use it less if necessary -- I can keep my all-important Enterprise Server and unlimited data plan and pay about $25 less a month than I'm paying now. Meanwhile, Gary can switch his phone over to a prepaid plan where he's charged ninety-nine cents a day every day he uses the phone, plus ten cents a minute, although calls to other Verizon phones are free. Since in most cases he'd be calling me, and since he normally won't even touch the device, this means we'll probably be paying about a dollar a year for his phone, which is a heckuva lot better than the $120/year we're currently paying to have his phone on my plan.
Yay.
I wrote all of this down and made the phone reps swear that the store reps will honor the numbers. We'll see if that happens. If not, I can probably nurse this phone along until September, when my contract expires, at which point I might switch to T-Mobile. But I'd rather have a nicer phone now.
Luckily, I remembered to ask about phone charges during our Alaska trip. If I'm on land in Alaska, the same charges apply as always. If I'm on land in Canada, I have to pay the international rate of twenty cents a minute or something, which is a bit much. Cruise ships have their own cell towers, evidently, and when I gave the rep our cruise line and ship name, he looked it up for me and informed me that my roaming charges on board would be $2.49 a minute.
Yowsa! Also, even if I don't make any calls, data's mind-bogglingly expensive too, so using the phone for e-mail access is a bad idea. The moral of this story? Don't even turn the phone on until we're on American soil. I will, however, spring for one of the mega-pricey onboard internet packages; I can't lose all access to e-mail.
I'm really glad I asked. We could have wound up with one heckuva Verizon bill for May!
Elsewhere in the land of "doing our job to support the economy!", today I signed up for a summer course at PSR, as well as a one-day workshop about nonviolence. Right now I'm trying to negotiate with the housing people to get a dorm room like the one I've stayed in the previous two times I've been there: a single room with its own sink but a bathroom down the hall. They're evidently now putting people either in suites or in pricey single apartments. I don't want to pay $100 a night for an apartment, and I don't like suites because there's usually weird social pressure with people in the other bedrooms: do you hang out with them, or not? My room's where I go to be by myself when I don't want to socialize and don't want to be disturbed by other people socializing. Berkeley weeks are semi-retreats for me, so this is important, but if it doesn't work out, it doesn't. They haven't given me a categorical "no" yet, so that's a good sign.
Okay, I think that's it. Time to work on emptying my study closet (a truly terrifying prospect) so the duct guys can cut large holes in it tomorrow.
Labels:
animals,
personal health,
shopping,
technogadgets,
travel
Tuesday, April 27, 2010
Mom's Legacy
Note: I have Gary's permission to tell this story.
In 1992, my second year in grad school, Mom had a stroke. After she got out of the hospital, my sister, uncle, cousins and I descended on her apartment. Gary, whom I'd then been dating for three years, came too, to try to support all of us.
It was a very small apartment with entirely too many people in it. The calmest person in the place was my mother, lying comfortably in bed. The rest of us were basket cases.
When it came time for me to leave, I stood at my mother's bedside and burst into tears. Gary, waiting in the doorway, watched me.
"Gary?" my mother said, gently. "Susan's crying."
"Yeah," Gary said, matter-of-fact. "She does that sometimes." (Everyone who hears the story falls over laughing at this line. What can I say? Gary's a guy. He likes to be able to fix things. He can't fix my being sad.)
"Gary?" my mother said, even more gently. "Give Susan a hug." So he did: a very good hug, too.
This has become one of our favorite family stories, and whenever I'm upset about something now, I say, "Gary? Give Susan a hug."
The other night I had a wave of sadness about Mom right after I went to bed. I always turn in earlier than Gary does. I lay in bed, sniffling, while he worked on the computer in his study. After a few minutes, I heard the bedroom door open, and thought maybe he'd come in for a different pair of glasses. But instead I felt his hand on my shoulder, and when I opened my eyes and looked up at him, he said, "When you're crying, I'm supposed to give you a hug."
Mom lives on.
Another Insight
The other day, thinking about how completely and utterly terrified I was as a kid -- constantly afraid that my parents would die; afraid that I'd get anything lower than an A, which would make me a failure; afraid of parties because I was so awkward socially; afraid to tell anyone I was afraid, because I had to keep my mother from worrying about me more than she already did and because my father needed me to be all right so he'd be all right -- I realize that I had a huge, honking case of Generalized Anxiety Disorder, with some Social Phobia and OCD (I went on a handwashing binge in grade school) and a large dollop of Separation Anxiety thrown in for good measure.
Is that sentence long enough?
Untreated anxiety commonly turns into depression; the two are close siblings anyway. For years now, various professionals of the shrink persuasion have been exhorting me to express my anger, which they've assumed to be at the base of the depression. A few times, I've said, "Y'know, I don't think it was ever anger. It was fear." Nobody picked up on that clue, not even me.
In one sense, this doesn't matter. Treatments for anxiety and depression are very similar, and when I was a kid, nothing much was available for either, anyway. But it blows my mind to realize that there was this huge thing happening that nobody recognized. The week before the funeral, my sister told me that when I was three or four, my mother was afraid I was psychotic because I had such lively conversations with my imaginary friends Stick, Bracelet, and Susie. She had me evaluated by a psychiatrist, who said I was fine and would come out of it. That person didn't even pick up on the fear, although a) he might not have been looking for it and b) I probably wouldn't have admitted it to anyone, even then.
But jeez. Poor little Susan, so scared all the time, and so stubbornly and nobly and ass-backwardsly keeping it a secret to try to protect everybody else! (My parents would certainly have done everything in their power to help me if they'd known.) I just want to go back, give her a hug, and tell her everything will really be all right, you know?
Friday, April 23, 2010
Thursday, April 22, 2010
Unexpected Upswing
I've been feeling much better since Tuesday. At some point, I suddenly realized that although I was sad, I wasn't scared or anxious. I'd always thought that after both of my parents died, I'd feel horribly alone. I don't. Instead -- and please don't take this the wrong way, because I loved both Mom and Dad very dearly, and I know they loved me too -- I feel about sixty thousand tons lighter.
I sat down to figure this out. It didn't take long. As long as I can remember, I've dreaded my parents' deaths; furthermore, I was deeply afraid that both of them would have horrible deaths. Mom had cancer twice, remember; Dad's father committed suicide before I was born, and Dad went through his own suicidal stretches, although none recently. Mom was expected to die in 1964 and Dad in 1977. Both of them had plenty of scares after those long-ago dates. I can't remember how many times, during one or another medical crisis, I've geared myself up and thought, "Okay, this is it."
Instead, they both died in their mid-eighties, relatively peacefully, with their pain controlled by hospice and with at least one loved one nearby. I'm not saying that chronic heart failure and chronic obstructive pulmonary disease are fun ways to go, but they aren't the tragedies I'd always feared.
I don't have to dread their deaths anymore. I only realized what a deep, baseline condition this chronic terror was when it wasn't there anymore.
This change is huge. I'm now wondering how much of my previous depression was really anticipatory mourning for them (or possibly, as my therapist friend Wendy has suggested, complicated grief). I'm not saying I don't have my biochemical issues -- given my genes, it would be a miracle if I didn't -- but I now suspect that there was a lot more situational stuff affecting my moods than anyone ever realized.
And instead of dreading my own aging process, I'm now actively looking forward to it.
Gary and I have long needed new heating ducts in the house, and also a new deck (and then there are the floors and the need for interior paint, but those can wait a bit). We'd already decided to go ahead and have the ducts put in, since we won't have to help pay to have Mom in a nursing home. On Wednesday I decided that before the summer's over, I want us to get the new deck, too.
In September, I'll turn fifty. I want to throw myself a big birthday party out on the deck. I'll hire Charlene, my fiddle teacher, to play for a few hours, and I'll invite everybody I know.
I never do stuff like this. I think the last time I had an actual birthday party was when I was in my twenties, and that was organized by friends. I've never thrown myself one. But since my parents are no longer here to be happy I was born, well, other people can be happy instead.
Just looking forward to this makes me happy. I'm still sad, too, but I know both Mom and Dad would want me to be making plans and looking forward to things.
After a long conversation with Wendy, I've also decided to start getting off meds as soon as possible. I see my psychiatrist next on May 5. Meanwhile, I've made an appointment with a therapist for next week. I found this guy on the web, but his site appeals to me, and I talked to him on the phone for quite a while today. He's very sympathetic to the fact that medication can dampen creativity -- he says he's had a lot of clients with that issue -- and he has an arts background himself, as well as eleven years of counseling experience. He's a fellow progressive who does cool work I admire (therapy groups for women in jail, for instance), and he's also lost his second parent within the last year, so he knows that territory. He's not on my insurance, but nobody I'm interested in seeing is, so I'm just going to bite the bullet and pay full price. Because he's an LCSW rather than a PhD, he's more reasonable than some other folks. I love social workers. Social workers and librarians are the Secret Rulers of the Universe. And if it doesn't work out, well, I'll find somebody else.
So I've achieved movement on several fronts, although I'm still moving far too slowly on work matters. Wendy strongly urged me to get an extension on turning my grades in, but that would only prolong the agony.
Oh, and I went to an aquasize class today. I didn't even hit anyone on the head with my noodle this time, although I wasn't terribly graceful with it, either. At one point the instructor looked at me and said, laughing, "Well, that's not exactly what I was looking for, but you're doing something, so I'll take it."
That's kinda my approach to life right now. Any something is a good thing.
Labels:
depression,
family,
fiddle,
loss,
personal health,
swimming
Tuesday, April 20, 2010
Physical Symptoms
I think Mom's death is hitting me harder physically than Dad's did (or maybe the combination of the two is taking its toll). I have the same inability to concentrate I did after Dad died, but now I have physical restlessness, too. You know how you feel when you have a fever and keep shifting your position because you just can't get comfortable, no matter how you arrange yourself? That's what this is like. I can't get settled in my own skin.
I'm sleeping okay, thank God. And I'm eating, but probably too much: I binged on an entire bag of Quaker Oats Kettle Corn rice snacks tonight (right after dinner, mind you: it was a sort of extended dessert). My weight definitely doesn't need this.
On the plus side, I did swim for forty minutes today. On the minus side, I'm having a lot of trouble getting work done; I squeaked through my classes yesterday, and pray to be a little better prepared tomorrow.
Yesterday I e-mailed my editor and agent to beg for an extension on the book deadline. I feel really awful doing this, given how late I delivered Shelter, but I haven't gotten any writing done since before I left for Philly, and any extra energy I have right now is going into grading.
Actually, that's not quite true: I have been practicing the fiddle, which feels concrete and immediate, but my brain isn't up to narrative at the moment. Narrative feels too abstract: or rather, narrative feels as if it requires me to construct the concrete out of the abstract, building a steam-engine locomotive out of air and water. The fiddle already exists, hanging right there on my wall. No alchemy required.
I'm sure none of that makes any sense. Grief carries well-known cognitive deficits. (My sister and I have taken great comfort in this. When I was back East, whenever one of us had a post-menopausal moment, we'd both chirp, "Cognitive deficits! Cognitive deficits!")
So, anyway, my editor and agent both responded with exasperated notes to the effect of, "Yes, of course you can have an extension! Why are you even worrying about the book? That shouldn't be your top priority right now!" My editor added a follow-up telling me to take care of myself.
They're good people.
I'm trying to take care of myself, but I don't think forty minutes of swimming cancel out an entire bag of Kettle Corn rice snacks. Although I had a sobbing fit while I was doing laps, so maybe that burned some extra calories.
I had the sobbing fit because it hit me that Mother's Day is right around the corner, and then it will be Mom's birthday, and Dad's birthday, and Christmas, and I won't have my parents for any of it.
Does anyone have any handy tricks for getting through the first Mother's Day after your mother has died?
Must go try to grade, so I'll be a little better prepared tomorrow. Does grading burn calories? Does grading burn more calories when you can't do the grading because you keep changing seats and positions every five minutes because you can't get comfortable?
Does whining burn calories?
Nertz.
Sunday, April 18, 2010
Home
We got home around one this morning after a surprisingly pleasant trip. Because I'd booked my flights at the last minute, I'd originally been in a middle seat for the long Philly-San Francisco leg. I went up to a gate agent to make sure I'd be getting frequent-flyer points, since I didn't see my number anywhere on the ticket; when I explained why I'd booked in such haste, he got very quiet for a second and then said, "An aisle seat just opened up. Let me put you there."
Not only was it an aisle seat, but no one was next to me! As a result of all the room -- relatively speaking -- I got more grading done than I'd expected, since I could spread out a little. I'm still very behind, but I'm less behind than I was yesterday afternoon.
We arrived in San Francisco thirty-five minutes early (almost unheard-of for an East-West flight), and then learned that our Reno flight would be on the same plane, although we still had to get off and reboard. But it doesn't get much more convenient than that, and despite the Reno airport's perpetual baggage delays, we even retrieved our suitcases fairly quickly.
The cats are glad to have us home. Sleeping in our own bed again was blissful. Felicity Fiddle sounds about as good as she could after a week of no practice and no one home to fill the humidifier. It's a gorgeous day here: sunny and eighty degrees.
This morning, semi-miraculously, I woke up in time for church. It was nice to be back, but a lot of people didn't know about Mom, so the service felt a little surreal, too. When Dad died, everyone had been following the saga for months -- especially since he lived here -- and some church folks had even met him. At that time, we had a working parish listserv that gave me a way to keep everyone up to date. But Mom was across the country, and the listserv broke a while ago and has deliberately been kept out-of-order by our temporary rector, who felt that it was being used for back-channel conversation people should have been having at parish meetings. The clergy knew Mom had died last weekend, but there was no announcement, even though she was included in the Prayers of the People. I made an announcement today, just so everyone would know, but response was muted. Oh well. I wound up feeling a bit isolated, but I probably would have felt that way anyway, under the circumstances.
There were connections, though. One of the readings this morning was Paul's conversion on the road to Damascus, a text I always associate with Mom because Paul's feast day, January 25, was her AA anniversary. Also, throughout the service I'd been trying to chase down a quotation I vaguely remembered about no one being an orphan because God loves all of us. Lo and behold, our gradual hymn was "Allelujah, Sing to Jesus!" which includes the line, "Alleluia! not as orphans are we left in sorrow now." So that was pretty perfect.
After the service, I skipped out on a church business meeting (that kind of thing, important as it is, makes my teeth itch at the best of times, which this isn't) to go swimming. I'd gotten no exercise in Philly and was worried that my back might be on the verge of going out again. I felt much better after an hour of swimming.
Now I'm back home, staring at piles of grading I have to try to get done before tomorrow. (How much worse that situation would have been without the unexpected space on the plane!) I'll get the most important stuff done, I know. The rest may have to wait a while.
I'm trying to take very good care of myself, which means, among other things, not stressing about work if I can help it. I know people understand; I've gotten kind cards and e-mails from colleagues and students, and I'm grateful for everyone's sympathy. I have to say, though, that I'll be very glad when the semester's over!
Saturday, April 17, 2010
Funeral
Mom's funeral yesterday went about as well, I think, as it could have gone. Liz, Lloyd, my nephew Owen, his girlfriend Kim and I arrived about an hour early and hung around downtown Englewood for a while. We bought a guest book and flowers for people to leave in the grave, and -- without having planned this -- met up with Mom's brother, two of his sons, and another son's daughter. Then we made our way to the cemetery, where we were joined by Ken, Claire, Gary's mother Doris, my mother's dear longtime friend Doris (who still lives in Englewood), and several other relatives by marriage. My cousin Val and her husband Bruce couldn't come because Val came down wiht a stomch bug.
We were very lucky: it didn't rain during the service, although the day was generally damp.
The priest had gotten there before anyone else. He did a brief, lovely service, and then Liz and I handed out a tulip to each mourner who wanted one, and people had the chance to put their tulip in the grave and say goodbye.
I say "grave," but it was a very small hole, just large enough for the ugly brown plastic temporary urn. The urn looked better covered with tulips -- and Mom wouldn't have wanted us to spend money on a fancy urn (and wouldn't have much cared what we did with her in any case) -- but when I put my flower in, I started sobbing. I got a lot of hugs.
It was very hard for me to walk away from the hole. We'd brought Mom back to her parents and back to the town where she, and we, grew up, but it was hard for me to leave her there. Even though I knew rationally that the contents of the box weren't her, exactly, and that I wasn't abandoning her, I felt like I was.
We all wended our way to a restaurant my uncle had chosen, which we had to ourselves and which had excellent food. Liz and I handed around two photo albums we'd put together the night before (skimming through thousands of family photos to find good ones of Mom), and I gave out the small packets of jewelry I'd put together for the women. I think people appreciated that. I gave one to the priest for his wife, too, and he kept saying, "She'll love this! She loves jewelry! This is a first!"
I hope the men weren't offended that I didn't have anything for them, but as Val put it when I spoke to her on the phone today, "Your mom collected jewelry and cats," and I didn't think the guys would want cats to take home, even if my sister had been willing to part with any of her furry herd. In any case, my attitude was, "I'm one of the chief mourners here and I'm going to do what I want," which may have been selfish but seemed to work out fine.
It was a nice party. I loved seeing everybody, even though I hated the occasion.
After the meal -- truly delicious! -- immediate family went back to my uncle's house. We chatted for a while, and then the Philly van headed south again.
By now it was pouring. Riding home, I realized that my irritability before the funeral, when I was snapping at everyone I talked to, had been replaced by complete exhaustion. I cried some in the van, picturing Mom's tiny grave without anyone there to keep it company. (As you can already tell, my Zen-like equanimity of the previous day or two had definitely evaporated.) When we finally got home to Philly, I had some tea and went to bed fairly early.
Gary and I slept about twelve hours last night. When I went downstairs, Liz was lying on her back in the middle of the living-room floor. I asked her if she was all right, and she said that she was fine, just unable to focus even after three cups of coffee.
I packed. We ate a large lunch. I packed some more. We left for the airport. Liz and I had a long hug goodbye, and she touched my memorial pendant and said, "Take good care of Mom." (Having the necklace slightly eased the pain of walking away from the grave.) I'm now blogging from the departure lounge, where there's free WiFi. Gary and I have a very long trip ahead of us. By some miracle, I was reassigned to an aisle seat, rather than a middle one, for the Philly-San Francisco leg, and I'm going to try to use the time to get some work done, since I have nine-plus papers to grade before Monday.
Time to get back to real life.
Thursday, April 15, 2010
Picking Up and Packing Up
Yesterday Liz and I picked up Mom's cremains. She's in a temporary urn -- an ugly brown plastic box -- but the funeral home puts everything in pretty blue-and-white shopping bags.
We picked up my memorial pendant, too. Although I'd been kicking myself about how much it cost, I actually really love it, and I'm glad I got it. It's a lovely piece: very heavy, probably mostly solid silver, a heart-shaped loop with two silver bales (which to me can symbolize either my mother and her two daughters, or me and my two parents). A tiny bit of Mom's ashes are inside, although I can't see them. It makes me feel closer to her. I also now have in my purse four of her pillboxes, three of which I gave her when she had breast cancer in 1988 so she could keep her various chemotherapy meds organized at work (she worked through almost her entire treatment). One of the pillboxes, a small, intricately etched silver cylinder, now has a lock of her hair in it: Liz and I each took a lock after she died. So I'm well-furnished in the reliquary category!
After we picked up the cremains, we picked up Gary at the airport. "Mom's waiting in the trunk of the car," we told him. My family uses black humor during times of stress.
Last night, Liz and I plowed through most of her clothing and handbags: two dressers, three closets and several boxloads. Liz didn't want much clothing, but I took a lot. We collected five large Hefty bags of stuff -- along with a few smaller shopping bags -- and we'll be dropping those at a shipping place today so they can be mailed to Reno. I'm going to pay to have them pack the stuff up for me; some of it's fragile (we found a few boxes of Mom's beloved ceramics and glass, still unpacked from when she moved in with my sister seventeen years ago), and having other people do the work will be less stressful for us. I have no idea where I'm going to put everything in Reno, but I'll figure that out when the time comes. The boxes can live in the garage with a lot of Dad's stuff, if necessary.
I'm using one of Mom's old handbags as a carry-on to hold all the jewelry. Gary arrived with only one carry-on to my two, so he can take an extra one.
Right now, Liz and Lloyd are picking up the rental van for tomorrow. When they get back, Liz and I will drop the bags off at the shipping place. Then we'll come back and start going through photographs. We haven't even touched Mom's extensive art collection yet -- she has a tremendous amount of work from her parents -- but that can wait if it has to.
Gary commented this morning, "You always predicted that you'd be a basket case when your mother died, but you don't seem to be." At the moment, I'm not; I'm feeling pretty peacful and even periodically joyous. My parents are out of pain, and Liz and I can get on with our lives. But I'm sure I'll cycle through many emotions over the coming months.
Tuesday, April 13, 2010
Slowing Down
Today was relatively relaxed for me. I slept late, ate breakfast, put together jewelry sets for the women who'll be at the funeral and a few who won't be -- great fun! -- and chatted with my nephew Owen, who came over today and will stay here until after the funeral. He only lives a few miles away, but it's still nice to have him in the house. He and I got to comparing laptops, and I was inspired to download the free Kindle app for PCs. I purchased a book by one of my favorite writers, Geoff Ryman, only to learn that the story starts on April 11. Since that's the day Mom died, the coincidence was a little eerie. Kindle for PC isn't an ideal reading experience, but it's better than an ereader for my BlackBerry would be.
I also just finished a pair of socks for a friend's husband; next, I'm going to take a break from gift knitting and make a pair for myself.
Our friend Ken, who introduced me and Gary and who's incredibly good about doing gigantic favors, is going to pick Gary's mother up in Livingston on Friday and drive her up to Englewood for the funeral (and then to the restaurant, and then home). This is a huge relief, because Doris can't drive and was planning to take a taxi for the fifty-minute ride, if she had to. Yikes! My cousin Val and her husband Bruce, the ones I visited in Amherst this summer, are also coming to the funeral, as is my friend Claire. So it will be a lovely reunion on all kinds of levels. Owen's girlfriend of five months wants to come too -- I'll finally get to meet her! -- so Liz and Lloyd are renting a van so they, Gary and I, and Owen and Kimmy will all fit in the same car.
What else? I was pretty calm today until, looking through some of Mom's dresser drawers, I came upon the quviut scarf I knit for her for Christmas 2008. Then I completely lost it and came downstairs, sobbing, until Liz stopped the vacuum cleaner to give me a hug.
Liz cleaned like a maniac all day. There's more to do tomorrow, but she made great progress. I helped a little bit -- namely by de-pilling two newly washed blankets (a bit of a challege, since each blanket sported an especially large, fluffy, and unwilling-to-budge pill in the form of a purring feline) -- but cleaning's not my strong suit, so Owen and I mainly tried to stay out of Liz's way.
Tomorrow: We have to go through photos for the funeral. I hope to fit in a gym visit and/or a haircut before we pick Gary up at 4:00, but that's probably over-ambitious.
And now to start a sock of my very own!
Labels:
family,
knitting,
loss,
rickety contrivances,
technogadgets,
travel
Monday, April 12, 2010
Jewelry
Today my sister and I went through Mom's jewelry (or most of it, anyway). I've mentioned before that shopping for jewelry was a favorite shared activity. Mom had been at it longer than her daughters, and had amassed a huge collection.
She kept the jewelry in many decorative boxes on and in her dresser. We started going box by box, dumping each out on the bed and divvying up the contents before moving to the next. This was a lot of fun; we both imagined Mom watching us and beaming, since she loved showing off her stash and had often told us, "You two can fight over my jewelry when I die." There wasn't any fighting, though. Each of us really wanted a few particular things, which the other happily granted. We spent a lot of the rest of the time trying to convince the other to take one piece or another: "Come on, that looks really good on you, you should take it," or "Mom would want you to have that one," or "You gave that to Mom, so you should have it."
The pieces I really wanted were:
* A sterling pin/pendant, with intricate cut-outs and etching, that I acquired for a song in junior high or high school -- I could afford it on my allowance! -- and gave to Mom for Christmas. I'd noticed it right away in our favorite jewelry store, and I was thrilled and disbelieving when I could actually afford it, and I was even more thrilled when she loved it as much as I did. And after all these years, I still love it.
* A carved-bone cat-head pendant I bought for her on Maui.
* A chunky gold-link bracelet with two charms on it. One is Mom's 90-Day pin from AA; the other is a gold locket with tiny photographs of me and my sister. Mom got sober in 1964, after twenty years of alcoholism, so she wouldn't lose access to us. To me, the bracelet symbolizes the fact that we were her reason for sobering up. Tonight I told Liz, "You know, we saved her life," and Liz allowed as how I was right, although she'd never thought about it that way. I hardly ever wear gold, and this bracelet really isn't my style, but I'm wearing it now, and I cherish it.
So those were my must-have pieces, but Mom had a lot of jewelry, so I also wound up with: a ton of gorgeous earrings in all kinds of styles, my father's gold Coast Guard cufflinks, a large variety of beaded necklaces Mom had strung herself, her own mother's baby bracelet (Mom's mom died when Mom was twelve, so I never knew her), a gorgeous jade bracelet and necklace set we think may have belonged to Mom's grandmother, a sterling art deco necklace, several beautiful and very unusual silver pins and pendants with a variety of stones, and a silver ring she particularly loved. Also all the pretty little boxes she'd kept everything in, because my sister has no patience for pretty little boxes. Also the sagebrush sachet I'd made and sent her for Christmas when we first moved to Reno in 1997: she'd kept it in a drawer, and it still smells great!
Mind you, Liz had at least that much stuff too, and we'd put at least that much again aside as pieces neither of us adored. Mom and her home healthcare aide, Lucille, shared a love of jewelry, so Liz wanted Lucille to be able to pick some things out. We removed our own picks and spread the rest out on the bed so Lucille would be able to see it more easily.
When we were done, I felt bereft. It broke my heart to see Mom's dresser without all the pretty little boxes on it, and to think that she'd never buy herself any more jewelry. "I always thought Mom's jewelry was inexhaustible," I told Liz, "and I thought Mom was, too. But neither of them was."
"That's a good way of putting it," she said.
Lucille came over, admired everything, and carried away a small shopping bag of goodies (along with nine boxes of Depends, which her current client can use). She told us funny stories about looking through clothing catalogs with Mom, amiably arguing about whether something was blue or purple. She told us how particular Mom was about matching her jewelry and clothing, how proud Mom was at the end when she managed to dress and adorn herself without help. She told us how proud Mom was of us, how much she talked about us. "I have two good daughters. They're a blessing to me." She laughed about Mom's directness. "She didn't hold anything back!"
She also told me that near the end, when Mom's dementia was worsening, she had lots of conversations with me when I wasn't actually present. I asked Lucille what these conversations were about, but she didn't know. "She talked to you all the time, though."
I wish I knew what she said! Maybe I'll find out, someday. For years, when Mom was in good health, we spoke on the phone every day. Lately we hadn't done that: my conversations with her were so short and one-sided that I grew to dread calling. Maybe she never had anything to tell me because she thought she'd told me already; maybe the dementia conversations filled in for the actual ones we weren't having.
After Lucille left, we went out for dinner to a place Mom liked, because all of us needed a break from the house. When we got back, Liz and I settled down to divvying up the jewelry Lucille hadn't taken. We got pretty punchy pretty quickly, and wound up each taking a lot of stuff we don't think we'll wear, to give as gifts to friends who will.
Then I noticed a bedside table with a large lower compartment. "I wonder what's in here?" I opened the compartment. "Oh, no! Liz, there's more!"
More pretty little boxes. Cross-eyed by now, we pulled them out and started sorting. They weren't as full as the others, and contained mostly inexpensive costume jewelry Mom hadn't worn any more, which is why they'd been in storage. There were a few good pieces, though.
Underneath all the pretty little boxes was a stack of paper. "What's all this?" I said, lifting it out, and immediately recognized a printout from my college computer center. The stack contained copies of college papers and stories I'd sent Mom, along with some letters, notably a really embarrassing one I sent her about a half-baked date I went on; I can't believe I told my mother that stuff! Poor Mom. Children don't want to hear about their parents' love lives, but I doubt Mom wanted to hear that much about mine, either. She always said with a sigh, whenever she compared me and Liz, "I have one daughter who tells me everything and another who tells me nothing." Guess which one I was?
I was avidly rereading the old letters when Liz announced that she was going to bed. And now, having blogged far too much today, I'll do the same.
Still to come: Clothing. Shoes. Wall decorations.
Doors

When our cat Phoebe died, Harley searched for her all over the house. Periodically, he'd scratch at a closet door, which is what he does when another cat's trapped in there and he wants us to let the other cat out. Gary, watching this behavior, said, "We're sorry, Harley. She's behind a door we can't open."
Mom and Dad are behind a door I can't open, yet. When I cross that threshold, I hope they'll be waiting for me.
Donations
Someone just asked if we have a preferred charity for memorial donations.
My mother loved animals above all things (even more than jewelry!). She mourned the loss of her cherished cats at least as much as that of people, and she couldn't hear about hardship or cruelty inflicted on any animal without feeling the pain in her own body. When my cat Bali was sick as a very small kitten and had to go to Animal Emergency in the middle of the night in Reno, Mom cried herself to sleep in Philadelphia, and she hadn't even met Bali yet; she'd only seen his photograph on my blog.
Therefore, Liz and I would be pleased for gifts in loving memory of Helen Palwick to be made to the Humane Society of the United States.
Thank you so much!
Arrangements
Everything's coming together. I made the funeral arrangements this morning: on Friday, Mom's cremains will be buried in Brookside Cemetery in Englewood NJ, the town where she grew up. She'll be with her parents in a family plot. It's a beautiful cemetery, a few blocks from where we lived when I was a kid, with a lot of old trees and a realio trulio babbling brook. My friends and I used to play there; my sister went there sometimes to do homework. So we all have associations with the place.
On Wednesday, Gary will fly in from Reno and my cousin Ken will fly in from Phoenix; Gary and I are on the same flights going home on Saturday, which will be very convenient even though we aren't sitting together. Gary's mother wants to come to the funeral if possible, so I'm working on transportation for her. We'll have the service in the early afternoon and then all go out to a nice restaurant.
One of my tasks, as the only currently religious person in the family, was to line up clergy willing to do a funeral without talking about God, or at least without talking much about God. I called the church in town where my mother went to AA meetings and was referred to a pastoral associate who told me, with what sounded like real regret, that he'd love to do it, but Friday was the one day he couldn't, because he was attending a conference. I told him I'd try other folks: I'd gotten several names from the Pastoral Care Department at Englewood Hospital.
But a few minutes later he called back and said, "You know what? I'd rather do your mother's funeral, so I'm going to cancel the conference."
"But you've never even met us!"
"No, no, it's a clergy conference, and you have no idea how boring those are. I'd much rather do your mother's funeral. It would be a privilege." Turns out he's in AA too; he was tremendously moved by what I shared of my mother's story and asked me all kinds of questions about her and about the family so he can personalize his comments as much as possible. He also promised to be brief! I told him that he was more than welcome at the restaurant afterwards and asked him what he charged.
"Oh, sweetheart, I don't charge anything."
Jeez! We're going to give him something anyway, but I was blown away by how warm and kind and generous he is. If only all clergy were like that! He was also very accepting of the "BCP lite" concept, and laughed heartily when I quoted some of my mother's remarks about religion, like, "How can anyone believe that nonsense?"
"Oh," he said cheerfully, "she might fit right into the Episcopal Church!"
It felt good to be able to make myself useful by getting all that set up. Meanwhile, my sister found some places to donate Mom's medical equipment and supplies. We're still looking for a place in Philly that will take partially used meds, as the homeless outreach clinic in Reno does. If anyone has any leads on that, please let us know.
I'm wearing some of Mom's clothes today. I know she'd be happy to see me in them.
Labels:
faith,
family,
loss,
rickety contrivances,
travel
Sunday, April 11, 2010
The Day Mom Died

We went downstairs and pigged out on lukewarm steamtable eggs and sausage. As we were coming back upstairs at 7:20, Liz's cell rang. I heard her say, "Yes, we're coming back upstairs now," and then -- her eyes widened, her voice disbelieving -- "she passed?" Mom's nurse had gone in to check on her at the end of the shift; she was still the same. For some reason, just a few minutes later the nurse decided to look in on her again before going home, and in that brief interval, she'd died.
One of the last times I visited Philly -- I don't remember if it was at Christmas or during the previous summer -- Mom and I were talking about death, and I asked her if she felt like she was dying. She said she didn't. I asked her to let me know if she ever thought she was, and she said she would.
Yesterday, when she could barely speak at all and when we were never sure we'd heard her correctly, both Liz and I thought we heard her say, "Susan, I'm going to die." A few minutes later, she said, much more distinctly, "Tomorrow!" At the time, I interpreted this as her meaning that she was going to die today; Liz wasn't sure.
Now I think I was right, and I think she was keeping the promise she made all those months ago. And if she died without anyone in the room, not even a nurse, well, I have to believe that's how she wanted it.
So, anyway, Liz and I cried, and all the nurses hugged us, and the doctor who'd treated Mom on the medical floor, before she was admitted to hospice, stopped by and hugged us and told us he'd phoned her primary-care doc, who'd been taking care of her for years. Then the funeral home came to get her and we said goodbye, since she'll be cremated, and we watched them wheel Mummy Mommy out of the room.
We came home to the house, sobbed some more, had lunch, and went to the funeral home, where I used too much of the estate's money (although I did offer to pay for it myself) to purchase a memorial pendant containing a smidgen of her ashes. Morbid, I know, but my sister and BIL were very kind about it. Now I'm kicking myself, since I'll have a lot of Mom's own jewelry, pieces intensely meaningful to both of us and prettier than this thing. Maybe I'll put it on a keyring or something.
Anyway, everybody's been really nice all day, although I find myself equally impatient with long-winded condolences and perfunctory ones. The nurses, last night and this morning, sang our praises as supportive and accepting family members. One of them said she told Mom, "You're lucky to have such great daughters." I've gotten some lovely e-mail notes from friends, which are about all I can handle right now. I'm not fit to be in human company.
So now we're going back and forth about the service. There's a family plot up in Englewood NJ, where Mom grew up and lived for years after Dad divorced her. We want to bury her cremains there. Nobody wants a memorial service in a church or funeral home, so we want to do something simple at the graveside. I suggested that everyone just say a few words, but Liz's husband said that Mom had liked a very brief, simple, non-religious Episcopal service we had for her father ("BCP lite for atheists," as I call it), so I need to call the Episcopal Church in Englewood and see if they have someone willing to do a funeral without mentioning God, since I'm the only religious person in the family at this point. I told Liz I could do BCP lite myself, if we could find a prayer book, but she said someone else should do it so I can concentrate on being the daughter, which makes sense.
So we'll do graveside BCP lite followed by a meal somewhere. I don't know if any of my friends would come from NYC or not; I'd like them to if they want to, but Liz kind of wants just family. We still have to hash that out. And I want Gary there, but feel guilty asking him to fly out for BCP lite in a graveyard, even though we've had a long-standing understanding that he'd travel for my mother's funeral, as I did for his father's.
So I'm all muddled right now, and generally snappish. Oh, and my BlackBerry's power outlet is loose, or something, so it won't recharge reliably, but it's no longer under warranty and the upgrade phones aren't equipped for an extended battery. I probably shouldn't have tried to deal with that annoyance today, but Liz and Lloyd had to pick up their taxes and the Verizon place was right there.
One of L&L's cats is dying; in fact, they expected him to predecease Mom by a good bit. He's lying on my lap now, raggedy and a bit smelly, but warm and purring. I think he's trying to comfort me, or else he misses Mom and wants me to comfort him. Or else he's just the same slut for affection he's always been.

I miss you, Mom. I hope you know how much I love you. I hope you know how much you mean to me.
The one grace is that it's a gorgeous spring day here, warm and sunny with abundant blossoms. Mom would be delighted.
Saturday, April 10, 2010
Blogging from the Hospital
I had a lovely long sleep last night, followed by a lovely large breakfast my brother-in-law cooked for me, followed by a lovely long hot shower.
The rest of the day was less tired than yesterday, but more teary. Liz and I showed up at the hospital to find Mom pretty unresponsive. I sat next to her, holding her hand and stroking her hair and weeping, while I told her over and over how much I love her and talked about various childhood moments I remembered: trips we took, my first day of kindergarten (a half day starting in the afternoon) when she held me on her lap all morning as I asked every thirty seconds, "Is it time to go to school yet?"
Liz sat in the family room during a lot of that. Around noon, Mom became a bit more responsive -- also more restless -- and we both talked to her and touched her and tried to make her more comfortable, a task at which Liz seemed much better than I. (Well, Liz has been living with her for seventeen years now.)
At some point the hospice doc showed up, examined Mom very briefly and gently, and said that her guess would be that Mom had about half a day left.
I was still really teary when my uncle and cousin and nephew and BIL showed up. My uncle took us out for a lovely sushi lunch, and then we went back to the hospital. (Before lunch, I'd had a crying jag on Liz's shoulder, and Liz and her son and I cried together too.)
Everyone but Liz and I said bye to Mom and left; the two of us resumed talking-and-touching duty. At one point Mom became very agitated; we tried various things to calm her, with mixed success, and she wound up bellowing at me, but not Liz, to get out of the room. I fled into the hall, where Mom's nurse gave me a pep talk. "Don't take it personally!" Later, I went back in and she seemed fine with my being there.
In the meantime, the nurse had called the doctor and gotten Mom's morphine dosage upped (to every hour instead of every two) because of the agitation.
Liz and I decided to spend the night at the hospital. We went downstairs for a quick cafeteria dinner, and then her husband brought us our meds and toothbrushes.
Liz is lying down on the couch in the family room. I'm stretched out on the recliner in Mom's room, trying to rest my back, which has had a hard day of it being twisted into pretzel-like positions at Mom's bedside. (I also took some Advil.). Mom's asleep, and seems peaceful.
Friday, April 09, 2010
Tired and Teary
I took another pretty picture of Liz's garden, but Blogger keeps eating it. Who knows?
Anyway, I arrived on time this morning after a smooth trip; I even managed to doze a bit, although I was in a middle seat. Liz and I went straight to the hospital. Last night, Mom was unresponsive and had been given forty-eight hours to live; this morning, she seemed to be much better, awake and oriented and alert, cracking jokes, much more her old self.
As the day progressed, though, she got worse again. She ate a little breakfast but no lunch, although she's still drinking water. Although she had some moments of lucidity, she spent most of the time sleeping and engaged in a lot of what palliative-care folks call "terminal restlessness:" throwing off the bedclothes, jerking her head or hands spasmodically, picking at her hospital gown, reptitively reaching up to wipe her lips, hair and face. Twice while I was there -- from about seven in the morning to four in the afternoon -- the nurses gave her morphine to calm her down. She was sleeping soundly when I left.
Liz and I met the palliative-care doctor, who feels that Mom's absolutely in the right place, and who -- when I followed her into the hallway to ask about possible timeframes, a question she'd clearly been expecting -- said, "My gut sense is a couple of days, a week at the outside. But I've been wrong before."
Her gut sense matches mine and Liz's; Liz and I wouldn't be surprised, in fact, if Mom died in the next twenty-four hours. Mom was looking and acting very, very much like Dad in the day or two before he died. Even Liz noticed the similarity between photos of Dad I'd sent her during that time and how Mom looked today.
So we think this is it. If it's not, Mom can stay in this inpatient hospice unit for up to six months with insurance coverage. Yay! The unit itself is quite lovely: there are homey touches in each room, like curtains on the windows and real bedside lamps and brightly colored lap afghans crocheted by volunteers. There are several lounges with couches where friends or family can sleep; there's also a recliner next to each bedside, and I spent quite a while napping in that today while Mom was napping in her bed. There's a kitchen with several microwaves and a fridge where families can keep special things for patients or themselves. Loved ones have 24/7 access to the unit -- no limitations on visiting hours -- and there are interesting programs like an art-therapy gruop for people who've been bereaved and a movie discussion group for the same population. We met an art-therapy intern who stopped by to introduce herself.
So I give the place high marks. My only quibble is that Mom has a roommate. I spent some time talking to this lady, who was lonely and had been crying out for her children (a daughter had visited earlier in the day, but had to leave to go to work), and I told the nurse when she asked for cranberry juice. While I'm glad I could help her, I also don't think it's fair for her to have to listen to Mom's dying process or for Mom to have to listen to hers, or for either family not to be guaranteed privacy with their loved one.
But we don't live in a perfect world. Space is limited all over, and this unit is already so much nicer than most of the places Mom could have wound up that my main feeling -- and my sister's -- is sheer gratitude that it exists.
I told Mom over and over today that I loved her and what a wonderful mother she is. When Liz went home to take care of some other family business, I stayed, and gave Mom permission to leave if she needs to. I promised her that while we'll always miss and love her, we'll be okay, because she's given the ultimate motherly gift of equipping her children to survive without her.
At the time, I wondered if I should have waited for Liz to be there before I said any of that, but when I told Liz later, she was glad I'd said it, because she'd wanted to and hadn't been able to.
Liz and I left around five -- we're both exhausted -- to come home for a very nice dinner her husband had fixed for us. After dinner, Liz gave me some things from my stepmother's apartment, and then we went upstairs and lay on Mom's bed and cried about how much we'll miss her, and what in the world are we going to do with all her shoes and pictures and figurines and . . . it's impossible to look anywhere in the house without seeing something she made, something that was originally hers, something she gave us or we gave her.
Then we dried our tears, and Liz went downstairs to relax a bit before bed, and I came into the guestroom to blog. Both of us have outfits laid out next to our beds, so that if the hospital calls in the middle of the night and says that Mom's going downhill quickly, we can get dressed right away and get over there.
I really hope that doesn't happen.
Tomorrow my uncle, Mom's brother, and one of my cousins will drive down from northern Jeresey to see Mom and us. Another cousin may fly in from Phoenix; he hasn't decided yet. Gary's standing by in case he needs to fly here out for a funeral. Liz and I talked a little today about researching funeral homes and about cremation versus embalming, but we haven't decided anything yet. It feels like a betrayal even to think about this stuff, although we both know it's necessary; we're both hoping for the "miraculous recovery" even the palliative-care doctor acknowledged to be possible.
I just hope I can get a full night's sleep tonight.
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